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Thu, Feb 28


National Institutes of Health

Rare Disease Day

Registration is Closed
Rare Disease Day
Rare Disease Day

Time & Location

Feb 28, 2019, 8:00 AM

National Institutes of Health, Washington, DC, USA

About the Event

In early February, great friends invited me to visit and attend Rare Disease Day at the National Institutes of Health. It was an amazing day listening to speakers like NIH Director Dr. Francis Collins, patients, physicians and advocates and learning more about the rare disease community. Dr. Casanova graciously arranged a meeting with his friend Dr. Dan Kastner, of the National Human Genome Research Institute.

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