About
To end childhood death from the rare disease
Isolated Congenital Asplenia.
About Us
Although rare, Isolated Congenital Asplenia is severely underdiagnosed as it's usually only discovered at autopsy after a child has suddenly died from sepsis.
To end childhood death from Isolated Congenital Asplenia, much more research is needed to learn about its cause, diagnosis and treatment.
Travis was a healthy, happy, beloved son, who on the rare occasion caught a cold, recovered quickly. How is it possible that merely 20 hours after spiking a fever, he would be gone?
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Isolated Congenital Asplenia is a serious and potentially fatal disease as it impacts the spleen, a key player in our immune system. Without a spleen, a bacterial infection could be life threatening to a newborn or child.
Our Pillars – Travis’ Legacy of Love
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Our Rare Disease Advocacy Partners
