Although rare, Isolated Congenital Asplenia is severely underdiagnosed as it's usually only discovered at autopsy after a child has suddenly died from sepsis.
To end childhood death from Isolated Congenital Asplenia, much more research is needed to learn about its cause, diagnosis and treatment.
Visit our blog for the latest news on research, events and our community.
Sometimes superheroes reside in the hearts of
small children fighting big battles.
We're In This Together
Our mission is to raise awareness about Isolated Congenital Asplenia through education, research and a strong community. But we can’t do it alone.
We need your support to help fund more research and education.