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Asplenia is the absence of the spleen.

Isolated Congenital Asplenia (ICA) is a birth defect in which one of the following occurs:

  • There is no spleen

  • There is only part of a spleen

  • There is a spleen but it's non functioning

Asplenia is the absence of the spleen.

NFL Hall of Famer Drew Pearson returns to Tee It Up to Fight Asplenia

Although rare, Isolated Congenital Asplenia is severely underdiagnosed as it's usually only discovered at autopsy after a child has suddenly died from sepsis. 

To end childhood death from Isolated Congenital Asplenia, much more research is needed to learn about its cause, diagnosis and treatment.

There is an urgent need for more research on Isolated Congenital Asplenia

Visit our blog for the latest news on research, events and our community.

Sometimes superheroes reside in the hearts of
small children fighting big battles.

Unknown

Travis was a 4-year-old boy who died from Isolated Congenital Asplenia

We're In This Together

Our mission is to raise awareness about Isolated Congenital Asplenia through education, research and a strong community. But we can’t do it alone.

 

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