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Indo US Rare
Bridging Rare Summit 2023

Joining forces with Dr. Harsha Rajasimha and over 40 Patient Alliance groups, we look forward to forging new connections globally. It is an honor for our founder Allison to speak on "How do advocacy and engagement differ across the world?"

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Newborn Screening Bootcamp

We're excited to be part of the most current conversations and developments in Newborn Screening. During this action-packed day, we'll engage with fellow rare disease organizations, focusing on the most effective ways to interact within the system and with key stakeholders at both the state and federal levels. Better and expanded early diagnostics are some of the best weapons in our arsenal to help bring an end to Asplenia Mortality.

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Co-hosted by the EveryLife Foundation for Rare Diseases and Expecting Health

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What is asplenia?

Asplenia is the absence of the spleen.

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Isolated Congenital Asplenia (ICA) is a birth defect in which one of the following occurs:

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  • There is no spleen

  • There is only part of a spleen

  • There is a spleen but it's non functioning

Asplenia is the absence of the spleen.

NFL Hall of Famer Drew Pearson returns to Tee It Up to Fight Asplenia

Send a Mouse to College - click to learn more about our newest campaign!

The Urgent Need For Research

Although rare, Isolated Congenital Asplenia is severely underdiagnosed as it's usually only discovered at autopsy after a child has suddenly died from sepsis. 

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To end childhood death from Isolated Congenital Asplenia, much more research is needed to learn about its cause, diagnosis and treatment.

There is an urgent need for more research on Isolated Congenital Asplenia

Visit our blog for the latest news on research, events and our community.

Sometimes superheroes reside in the hearts of
small children fighting big battles.

Unknown

Travis was a 4-year-old boy who died from Isolated Congenital Asplenia
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With Fry's Community Rewards, when you link your Fry's Food & Drug rewards card with T.E.A.M. 4 Travis, Fry's donates a portion of each purchase to T.E.A.M. 4 Travis. It doesn't cost a thing and you'll be helping our mission!

From Desktop:
1. Log into your Fry's account
2. Scroll down to Community Rewards
3. Click on the link to search for T.E.A.M. 4 Travis
4. Select T.E.A.M. 4 Travis and click "Save"

From Mobile:
1. Open your Fry's app
2. Tap the 3 lines in the upper right corner
3. Tap Rewards, then Community Rewards
4. Select T.E.A.M. 4 Travis and click "Save"

We're In This Together

Our mission is to raise awareness about Isolated Congenital Asplenia through education, research and a strong community. But we can’t do it alone.

 

We need your support to help fund more research and education.

Support T.E.A.M. 4 Travis through a donation
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