Upcoming Events

  • Jul 19, 8:00 AM – Jul 22, 5:00 PM
    Ronald Reagan International Trade Center, 1300 Pennsylvania Avenue NW, Washington, DC 20004, USA
    T.E.A.M. 4 Travis anticipates joining hundreds of Rare Disease friends this summer in our nation's capitol for 4 days of advocacy, education, community development and sharing our story with Federal Legislators.
  • Inaugural Golf Tournament - Coming Soon
    Spring 2022
    The Wigwam Golf Resort, 451 N Old Litchfield Rd, Litchfield Park, AZ 85340, USA
    Teeing Off Spring 2022

Past Events

  • Rare Across America 2021
    Zoom Meetings
    Mar 03, 10:00 AM – Mar 04, 3:00 PM
    Zoom Meetings
  • Papa John's Pizza Fundraiser in Phoenix
    https://www.papajohns.com
    Feb 27, 10:30 AM – 11:00 PM
    https://www.papajohns.com
  • ​Rare Diseases and Orphan Products Breakthrough Summit
    nordsummit.org
    Dec 08, 2020, 8:00 AM – Dec 09, 2020, 5:00 PM
    nordsummit.org
  • Newborn Screening Bootcamp
    https://everylifefoundation.org/
    Sep 30, 2020, 7:00 PM – Oct 28, 2020, 7:00 PM
    https://everylifefoundation.org/
  • Portillo's For Good Fundraiser in honor of Travis's 6th Birthday​
    Portillo's of Avondale
    Aug 17, 2020, 3:00 PM – 9:00 PM
    Portillo's of Avondale, 10331 W McDowell Rd, Avondale, AZ 85392, USA
  • Congressional Recognition from US Representative Debbie Lesko​
    The Wigwam Resort Litchfield Park
    Jul 17, 2020, 10:00 AM
    The Wigwam Resort Litchfield Park, 300 E Wigwam Blvd, Litchfield Park, AZ 85340, USA
  • Rare Disease Week​​
    Washington
    Feb 25, 2020, 8:00 AM – Feb 28, 2020, 5:00 PM
    Washington, Washington, DC, USA
  • Christmas in the Park​
    Litchfield Park
    Dec 14, 2019, 10:00 AM
    Litchfield Park, Litchfield Park, AZ, USA
  • Community Yard Sale
    Thompson Funeral Chapel
    Oct 19, 2019, 8:00 AM
    Thompson Funeral Chapel, 926 S Litchfield Rd, Goodyear, AZ 85338, USA
  • Latin American Society of Immunodeficiencies (LASID) Conference
    Cancun International Convention Center
    Oct 09, 2019, 8:00 AM – Oct 12, 2019, 6:00 PM
    Cancun International Convention Center, Cancún, Quintana Roo, Mexico
  • Global Genes Rare Patient Advocacy Summit 2019
    Sheraton San Diego Hotel & Marina
    Sep 18, 2019, 8:00 AM – Sep 21, 2019, 5:00 PM
    Sheraton San Diego Hotel & Marina, Harbor Island Dr, San Diego, CA 92101, USA
  • WILDFLOWER BREAD COMPANY NEIGHBORHOOD NIGHT
    Wildflower Bread Company Locations
    Aug 15, 2019, 8:00 AM – 10:00 PM
    Wildflower Bread Company Locations, Gilbert, AZ, USA
  • RARE ACROSS AMERICA
    United States Congresspersons Arizona Di
    Jul 29, 2019, 7:00 AM
    United States Congresspersons Arizona Di, Arizona, USA
  • RARE on the ROAD
    History Colorado Center
    May 18, 2019, 8:00 AM – 12:00 PM
    History Colorado Center , Denver, CO, USA
  • Rare Disease Day
    National Institutes of Health
    Feb 28, 2019, 8:00 AM
    National Institutes of Health, Washington, DC, USA
  • Selleri Lab UCSF Visit
    University of California, San Francisco
    Jan 23, 2019, 8:00 AM
    University of California, San Francisco , San Francisco, CA, USA
  • Casanova Lab Visit
    The Rockefeller University
    Nov 05, 2018, 8:00 AM
    The Rockefeller University, New York, NY, USA